My son is 22 years old but cognitively a 6 month old.  He’s about 4 ft 2 and weighs 63 lbs.  He is the love of my life my heart and soul.  He is happy ALL the time.  From the time he wakes up til bedtime he is happy.  He loves chocolate and ice cream.  I promised him when he was born with Down’s Syndrome and when his heart needed surgery at 6 months old, and his brain was damaged that I would ALWAYS take care of him.  

I was diagnosed with Complex Regional Pain Disorder.  I have extreme pain in my hands and feet.  I now can no longer care for my son.  I can no longer work outside of the home either.  My husband Ray cares for Aaron completely.  He receives IHSS now.  If it weren’t for IHSS we would have no income and we would lose our home and everything else.  Aaron would not have a place to live.  It is bad enough that I can no longer keep the promise I made to him but if we lose IHSS we lose everything.  I want Aaron to stay happy and have his home and toys.

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