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Home care is real work, and real work deserves real retirement security

Home care is real work, and real work deserves real retirement security

When my daughter Delaina was in second grade, an undiagnosed tumor in her brain hemorrhaged and left her with brain damage. Now, Delaina is 22 years old, and I work as her home care provider. She can understand me, but has behavior issues. Delaina can do basic math and write her name, but it’s hard for her to learn more. She’s also lost her ability to walk or feed herself. We live month to month, because I don’t make much as Delaina’s full-time home care provider. And if something were to happen to IHSS and I lost my job as […]

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Demanding dignity and respect for spouse and parent home care providers

Demanding dignity and respect for spouse and parent home care providers

My husband Leon is 69 years old and lives with COPD and cirrhosis of the liver. My full-time job since 2000 has been providing him with in-home care, so he can remain in our home where he is happiest and healthiest. I’ve been a home care provider for 16 years, and for 16 years I’ve worried about what would happen if an unexpected tragedy struck my family. One of my biggest fears is my husband passing away. I would be grief stricken, and because I don’t qualify for unemployment, I would also have no financial safety net while I searched […]

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Without Social Security, I may never be able to retire

Without Social Security, I may never be able to retire

My 39-year-old son Jacob was born with a brainstem defect. He relies on me 24/7 to provide for all of his needs, including bathing, preparing his meals, paramedical care, and exercise. My home care wages are the primary source of income in our home when my husband has trouble getting landscaping work. I’m grateful for the opportunity to work as Jacob’s home care provider, but I’m frustrated that my work is not taken seriously. Exclusion from Social Security and Medicare is going to hurt my family. At some point, I may not be able to care for Jacob any longer, […]

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Honoring older Americans in May and everyday

Honoring older Americans in May and everyday

May is Older Americans Month, and at 73-years-old, my mother is part of one of this country’s greatest—and largest—generations. In his Older Americans Month proclamation this year, President Obama reminded us that “within the next 13 years, more than one in five Americans will be of retirement age, and our nation must make it a priority to ensure they are able to retire and live with dignity and respect.” More and more ‘Baby Boomers’ are retiring every day. And as they live longer, many will choose to age in their homes with the assistance of in-home caregivers like us. In […]

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UDW Advocacy Council helps family win more IHSS hours, back pay, and peace of mind

UDW Advocacy Council helps family win more IHSS hours, back pay, and peace of mind

You never know when your life will change. Before my son was born with Down syndrome, I worked in phone sales and my husband had a successful career. We were comfortably able to provide for our family. Fast forward two decades. My son is 22-years-old now, and I work as his full-time caregiver through IHSS. I have no regrets, because like any parent, doing whatever it takes to keep our son happy, healthy, and safe is my first priority. But life is complicated. Now, my husband Emad is no longer able to work because of severe back injuries that cause […]

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Paid for by United Domestic Workers of America Action Fund, sponsored by United Domestic Workers of America. Not authorized by a candidate or a committee controlled by a candidate.

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