
This is a "portal" page; a list
of links AND RESEARCH that has been gathered to help home care
workers and their clients find the help and resources they need.
At UDW we understand that home care workers have an enormous
array of responsibilities attached to their job, and that the
work can be endless and at times exhausting. As a home care worker,
cooking cleaning and domestic chores are often only the beginning of
your responsibilities. Sometimes home care workers need help
with paperwork, appointments, and advocacy for their client's
government support. Your client's medical therapies
can call for knowledge in the areas of nutrition, physical
therapy, and/or specialized medical equipment. Some clients also
need emotional support or counseling. With recipients that are "shut-ins," you
are at times their only link to the outside world.
On top of all the requirements of your clients, there are the
political issues that could cut funding or even eliminate home
care worker's jobs.
Sometimes it just helps to know that you are not alone, and
you are not crazy! The good news is that
there are resources and help available to you. UDW has
put together a list of resources for home care workers and their
clients, which will help you to find the right information or
service, with minimal investment of your time. We can not exhaustively
research every website ourselves (please read the disclaimer
below carefully), but we can give you a place to start
from, and hopefully our work will make yours a little
easier and less time consuming.
Disclaimer
By providing the following information and links to other sites, United Domestic
Workers of America does not in any way guarantee, approve or endorse the
information or products available at these sites, nor does a link indicate
any association with or endorsement by the linked site to UDW. We are
making these resources available so that home care workers and their clients
may streamline their research process as well as network on local, state,
and national levels. Information about IHSS rules or legal issues
given on this site are meant strictly to be a research starting point and
are subject to current rules and law. While we try to publish the most
current information available, the laws & rules that govern IHSS are
complex and do change. Always use professional advice and verify
all information to make sure it is current before making changes that might
affect your eligibility.
PAID FAMILY LEAVE FOR
HOME CARE PROVIDERS
|
“California
Paid Family Leave (PFL) program,” is an enhancement
to the State Disability Insurance Program (SDI). It
is intended to create a family temporary disability insurance
program to help reconcile the demands of work and family
for eligible California workers.
Home care providers who must leave work (their
IHSS consumer) to care for a seriously ill parent, child,
spouse, registered domestic partner, or bond with a new
minor child are eligible. PFL can be used for a maximum
of 6 weeks in a 12 month period. The provider will
receive partial payment based on the prior quarter's earnings
-- approximately 55% of lost wages.
Only those IHSS providers who have paid in
to SDI are eligible. Family member providers (mother,
father, son, daughter, brother, sister) do not pay in to
SDI unless they elect to do so. Other providers
pay in automatically. Home care providers can see
on their pay stub whether SDI is being deducted. PFL
is administrated by the state Employment Development Department
(EDD) and applications are filed with them.
It is important not to leave your client/consumer
without a home care provider if you use PFL. The
consumer should be given as much notice as possible so
that s/he can arrange for a replacement. The consumer
is not required to hire the original home care provider
once s/he has completed the PFL so it is important to talk
this over together and come to a clear understanding.
Providers should also check their county's
health care benefit policy if they are using the health
benefit provided with IHSS. PFL should not jeopardize
their coverage if the county policy allows 3 months before
they are termed out (due to hours falling below the requirement).
More information
http://www.edd.ca.gov/fleclaimpfl.htm (Employment
Development Website)
All
County Information Notice (PDF
file)
Call (English): 1-877-238-4373 (Spanish):1-877-379-3819 TTY
1-800-563-2441
|
Information
specifically related to the IHSS (In Home Supportive Services)
program:
|
FAQ
for Understanding the Annual Needs Assessment, Fair Hearing
Process, and other
IHSS Regulations
please
make sure to read disclaimer above
Eligibility, Annual Reviews and IHSS Hours;
what you need to know and where to find it:
Since consumers (recipients)
of IHSS have their hours authorized (set) during
the assessment process, it is important that homecare providers also
understand that procedure and be present
to advocate for their client when necessary. In
fact, the provider (home care worker) can and
should ask for their client to have a re-assessment
if they observe changes in the consumer's condition. This
informs the social worker so that they understand
exactly what the consumer needs to live safely
and remain healthy in their own home. The resources
listed below in the Advocacy
Resources, Appendix will help both consumers
and providers understand the assessment process,
fair hearings, eligibility, share of cost, and
other aspects of the IHSS program.
The
key to an accurate assessment is
understanding the rights of the consumer, and also
having the correct records (paperwork). The
topics below will help both consumers and providers
understand the Needs Assessment and Fair Hearing
processes. At the end of each topic there
is a reference to the resource(s) where that subject
is covered in more detail: Advocacy
Resources, Appendix
- Preparing for an Assessment or Review; know your
rights. For your information, maximum
IHSS hours allowed are 283 per month. IHSS
only pays for specific tasks and
you can not ask for time to do things that are not
authorized (example; watering plants). The
hours authorized for each consumer vary according
to the case worker's assessment of the consumer's
needs. This assessment is the case worker's interpretation of
the law. Although case workers use guidelines
to determine the hours for each authorized task, they
are still required by law to adjust time for task
allowance (provide additional time) if it
can be shown why it is necessary. If the case
worker does not do this the consumer (or their representative)
can ask for a hearing (appeal) before an administrative
law judge. Also for your information, there
is a category of IHSS called Protective Supervision
(see below) that will authorize a "qualified" consumer
for 195-283 hours.
References (Appendix
1,3,4,6,7,8,10,18)
"Log" Your
Time: To make sure the consumer's rights are upheld
and he/she gets the hours they are entitled to, keep
a diary (log) of the actual time it takes to complete
each task over a minimum two week period. Since
the time required often changes with the condition
of the consumer, this allows the case worker to average
the "good" days with the "bad" ones. Make
sure to make notes about why time is necessary i.e. "Recipient
eats in bed, therefore bed must be cleaned & vacuumed
3 times a day," or "Respiratory condition
requires extra cleaning for dust-free environment." The PAI
Package (Appendix 1) below includes complete
instructions and worksheets to help you keep track
of the tasks and which ones IHSS will pay for.
(Appendix 1,3,5)
How
to ask for documentation from your doctor and other
health care professionals: IHSS uses specific
forms that you need to take to the consumer's doctor
and have him sign. The case worker should give
or mail you these forms, although some are available
online. For personal care services like
bathing and feeding etc, use the log (record) you
create to make a list of the tasks which the
consumer must have assistance with to live safely in
their own home. Most doctors do not know these
personal details about their patients, even when they
know their medical condition. Give the doctor
your written record, and ask him or her to verify it
and give you a signed paper that states the consumer's
needs. The doctor can verify any of these
specific needs with your client through physical examination
/ office visit if necessary. Do not ask the doctor
to verify how long it takes to do each task. You
are asking for a clear list of the types of services
that the consumer needs to live safely in their own
home, based on the consumer's physical capacity. Also
get additional documentation for the consumer's diagnosis, medications
prescribed, and any other assistance
prescribed by the doctor (like physical therapy,
injections, use of catheter/colostomy etc.) All
these things should be documented by the doctor as
necessary.
(Appendix 1,3,6,10,11,12,18)
What
IHSS will pay for: All IHSS hourly "Needs
Assessments" are based on what is required for
health and safety (not comfort or companionship). Examples
of "need" include personal care services; ambulation
(helping client move), bathing, bowel & bladder
care, dressing, feeding, medications, etc, and domestic & related
chores (cleaning, food preparation & menu planning,
laundry, shopping, etc). Para-medical services, medical
transportation, respite (to relieve a non-IHSS
family care provider) and protective supervision,
are other types of services IHSS will cover. The
exact categories and tasks that IHSS will pay for are
listed in
Appendix (1, 2, 3,4,5,6,
7,8,18)
The
consumer has a right to have an authorized representative
present at the Needs Assessment, or at a Fair Hearing . Consumers
are often embarrassed or intimidated about revealing
what they can not do for themselves during the
assessment process. IHSS case workers usually
want to question the consumer directly (not the home
care provider) about what they can do or can not do. However
in some cases the consumer is not mentally or physically
able to answer questions accurately. It
is important that there be a witness or advocate present
during the Needs Assessment process. This
can be the home care provider, AND/OR a union representative
OR a friend, OR a family member, OR an attorney, OR
an advocate from the community.
If
the home care provider is advocating (speaking)
for their client it is important to address
the case worker about the consumer's
needs -- not your own need for
additional hours. This distinction must
be very clear.
Your
local Office on Aging, or Independent Living
Center can often provide an advocate free
of charge. Consumers may also have
someone represent them at a hearing before
an administrative law judge (if the assessment
is disputed). The consumer needs
to authorize their
representative by providing a signed,
dated paper, stating that the person is
authorized to represent the IHSS consumer. The
resources below will have additional information
about finding an advocate in your area
if you need one.
Appendix (1,2, 3,4,5,10,14,18)
When
to ask for a Re-Assessment: The consumer or the
home care worker can ask for a re-assessment at any
time if the consumer's condition has changed, or if
the consumer or their representative(s) don't agree
with an assessment given by the case worker. The
consumer should get a "Notice
of Action" within 30 days after the IHSS
case worker visits them in their home for an assessment. If
the county plans to reduce or deny services then they
are required by law to mail the NOA 10 days before
the reduction or denial takes effect. When a "Notice
of Action" (NOA) has been received that shows
a reduction of hours, do the paperwork
for the appeal immediately because
there is a 10 day deadline to keep the same hours while
waiting for a hearing. Also it will help if the
case worker understands you are willing to take the
case to hearing.
Because
IHSS case workers often have large case
loads, it is sometimes hard to get them
to return your phone calls, when asking
for a re-assessment. In this circumstance
use a certified letter (that
requires a signature on receipt). You
may also ask to speak with the case worker's
supervisor. Always write down the
name of who you talk to, and when you talked
with them.
The
re-assessment is particularly important
if the IHSS consumer has been in the hospital,
as additional care such as assistance with
physical therapy or apparatus such as catheters
are often needed. The client's IHSS
case worker should be informed as soon as
the client is admitted to the hospital,
and should do a re-assessment as soon as
they are sent home.
A
re-assessment should also take place if
the consumer moves, because the accessibility
level in a home affects time for task determination. Also
you should know that if the consumer moves
to a different county the rate of pay may
be different as well as the needs assessment. To
see rates of pay in different counties
go to our Statewide
Information page. You can find
additional information for UDW counties
by clicking the name of the county on our County
Pages.
Appendix (1,3,4,5,6,7,8,18)
Understanding
the Notice of Action (NOA): The "Notice
of Action" is a legal document that the consumer
should get in the mail after having an assessment (or
annual re-assessment) in their home. If the county
denies or intends to change a person's IHSS services,
the county must give a written notice to that person. Except
in a few limited circumstances (like death or institutionalizing
of the consumer) the county is legally required to
mail the NOA at least 10 days before the effective
date of the action. In cases where there is no
change in services the county may take up to 30 days
to send the NOA.
Since
there are time deadlines involved in appeals,
make sure to pursue this document by calling
your IHSS regional office if the NOA has not
been received. The NOA is a piece of
paper that has "Notice of Action" written
on it. The NOA states exactly how many
hours per month the consumer has been authorized,
and how much time is authorized for each task. The
paper will list the tasks and name them (like "feeding," or "dressing"),
as well as naming the category (like "Personal
Care," or "Domestic"). The
NOA will also have a date at the top telling
when the authorization of hours becomes effective. This
date is very important when asking for an appeal. On
the back of the NOA is a place to ask for
an appeal, and the address where the request
for appeal is sent. (Appendix
1,2,3,4,5,18)
How
to Appeal -- Ask for a Fair Hearing before an Administrative
Law Judge. When the consumer has hours authorized
by an IHSS case worker, this assessment is the case
worker's interpretation of the law. Asking
for a "Fair Hearing" is how you ask for a
higher authority to re-assess the case when the consumer
-- or his/her representative(s) -- don't agree with
what the IHSS social worker decided. The Fair
Hearing takes place before an administrative law judge. This
administrative law judge is highly trained in the law
that covers your case, and also trained to be fair
and impartial. The Fair Hearing process does
require more paperwork, but you can get
someone to help you. It is important
to prepare for a hearing (resources #1 and #3 in the Appendix cover
hearings in detail). The consumer or their
representative should appear in person for
the hearing.
How
to get started: The consumer should get
a "Notice of Action" in
the mail within 30 days of the case worker's
home visit (assessment). This Notice
of Action lists exactly which tasks the
consumer is authorized for and how much
time is authorized for each task. On
the back of the document is the portion
that can be filled out for an appeal (Fair
Hearing) and the address where the appeal
form is mailed. The Notice of Action
also has a date that the new authorized
hours take effect. It is necessary
to fill out the request for appeal within
10 days of that date and ask for "Aid
Paid Pending" if the consumer's
hours were reduced. The consumer should
always keep a copy of the Notice of Action
(after the Appeal portion is filled out)
for their own records. If you are
representing the consumer in a fair hearing,
ask their permission to keep a copy for
your own records. If the consumer's
hours have been reduced, it is even more
important to act quickly (see
below). Sometimes when you
ask for an appeal, an IHSS supervisor will
decide to re-examine the case worker's Needs
Assessment before going through the Fair
Hearing process, and adjustments can also
be made at that stage. The consumer
always has the right to appeal decisions
of the case worker or IHSS supervisor, before
an administrative law judge. Appendix
(1, 3,4,5,10,14,18)
How
to keep the same hours while waiting for a Hearing: Ask
for an appeal, and state that you want " AID
PAID PENDING" (in writing) 10 days BEFORE
the effective date on the Notice of Action. Make
sure to keep a copy. This means the consumer
can keep the same hours until they go to a hearing. Sometimes
it takes weeks or months to complete the Fair Hearing
process. The Aid Paid Pending the decision will
not be considered an overpayment (you will not
need to pay it back) even if the judge decides in favor
of the county,
Appendix (1, 3,
14,18)
Do
you have a client that can't be left alone? They may
qualify for Protective Supervision This category
is for monitoring the behavior of non self-directing,
confused, mentally impaired, or mentally ill persons
(examples; Alzheimer's patients or the developmentally
disabled). Protective Supervision is not
based on physical disability, but on mental
disability; where
the person may harm themselves or others if left alone. Protective
Supervision will qualify the consumer for 195-283 hours. Because
this category is based on mental conditions it
requires very specific documentation. IHSS case worker's
are supposed to inform home care providers about Protective
Supervision.
Appendix (1,2,3,5,6,18)
Do
you know someone that needs In Home Supportive Services? The
In-Home Supportive Services program (IHSS) is designed
to keep low income persons living in their own homes
and communities whenever possible, rather than being
institutionalized. The IHSS program does not
provide 24-hour assistance. Someone with mental
limitations who needs continuous supervision 24 hours
a day, or who needs round-the-clock nursing care, may
be denied IHSS coverage unless family, or other community
resources cover the unpaid hours. However if
having a home care provider come in and help during
the day will prevent nursing home or institutional
placement then they should apply for IHSS. Appendix
(1,2,3,4,6,7,8,18)
Who
is eligible for IHSS, and how do they apply?
A person
is eligible for IHSS who is a California
resident, living in his/her own home and
who meets one of the following:
- Currently
receives SSI/SSP benefits and Medi-Cal
linked to SSI or 1619(b) Medi-Cal;
- Receives
Medi-Cal with no share of cost including
through institutional deeming, or
the continuous eligibility for children
program, or the Aged and Disabled
Federal Poverty Level Program, or
the 250% Working Disabled Program;
- Receives
Medi-Cal with a share of cost.
- Is eligible
for Medi-Cal but has not applied.
Otherwise
eligible applicants who are currently institutionalized
or living in a licensed residential arrangement
but wish to live in their own home and
are capable of doing so if IHSS is provided,
should also apply.
If
you are not sure, but the person is low
income and needs help, then contact your
local In Home Supportive Services Public
Authority (find their listing in Your
County) Your local
IHSS Public Authority will tell you how
to apply. The document "What
About IHSS" (Appendix
document 3 ) has very complete
information about eligibility and the application
process and can help you gather the correct
paperwork. Appendix
(1,2,3,4,5,7,8,18)
Do
you know someone who wants to work as a home care provider,
or do you need another client? Most counties
provide an IHSS Registry designed to match home care
providers with consumers (recipients). Often
you must attend training or orientation meetings and
complete a background check to be on the registry. Contact
the IHSS Public Authority in your
county.
Appendix (1,3,5)
What
benefits and responsibilities come with being a home
care provider?
Home care providers pay in to and may become eligible for social security,
and Medicare benefits. These deductions are automatically made
by the state payroll agency. Some providers pay in to and may
become eligible for state disability insurance (SDI), unemployment
insurance (UI), and worker's compensation benefits. Family members
(mother, father, sister, brother, etc.) must elect to pay in
to the above three insurance/benefit programs (the deductions are not
made automatically when the provider is a family member). It
may be important for family members to be covered under these programs
if they are injured on the job or loose their job. Additionally, Paid
family leave (an enhancement to SDI) may be available under
state disability for eligible workers who have paid in to SDI.
If
the provider works in a county represented
by a union, with a contract that includes healthcare,
then providers (home care workers) will be
eligible for medical benefits under
the terms of the contract. There is usually
a small co-pay. If the contract includes "agency
shop" (which most contracts have), then
union dues will be automatically deducted from
the providers paycheck. There are additional
benefits to being a union member. For
UDW counties get more information here for dues and union
member-benefits; for information on
wages and medical benefits go to Your
County and click on the name of your
county in the list or on the map.
Home care
providers are providing a service for pay - therefore they are responsible
to pay income taxes if their income is high enough. Income tax
withholding (automatic deduction from paycheck) is available but not
mandatory. The provider must request the county to withhold state and
federal taxes from their pay if he or she wants this done. If
tax withholding is not requested, wages may still have to be reported
and taxes paid depending on income level and/or tax status. Also
depending on income level & tax status, the home care provider
may be eligible for Earned Income Credit (EIC). This may
be a reduction of income taxes or a cash benefit if the provider
has low income and does not pay income taxes. For more information
on the EIC contact your local IRS office or your tax consultant and
ask for a form W-5.
Appendix (1,2,3,4,5,18)
References;
Advocacy Resource Appendix
(links to PDF documents and web pages) |
|
Issue/Document Description |
Document Link(s) |
|
(1) IHSS Fair Hearing and Self-Assessment
Package
Multiple IHSS topics, has 2006 update that details changes made to the
program.
This
is a key resource document published by Protection
and Advocacy Inc. If you are confused by all
the resources and only look at one - this should
be that one. It has detailed information
and worksheets to prepare for an IHSS Initial
Intake, Annual Assessment or Hearing before an
administrative law judge.
Also
covers the subjects of Protective Supervision,
Paramedical Services, Children with developmental
disabilities, psychiatric diagnosis, and other
categories of IHSS eligibility.
One
of the features of this package is that it describes
reasons which IHSS case workers use to deny
benefits, and what you need to say in response
to clarify why the benefits are justified. |
English (Includes 2006 update)
IHSS Fair Hearing
and Self-Assessment Package
(PDF file, 29 pg, 224 KB)
View
as web page
Spanish:
IHSS Fair Hearing and Self-Assessment Package
(PDF file, 26 pg. 227 KB)
Vietnamese:
IHSS Fair Hearing
and Self-Assessment Package
(PDF file, 327 KB)
Other
languages available on the PAI website. |
(2) Disability 101 Website; IHSS
Multiple IHSS topics. A user-friendly resource designed for non-professionals
as well as professionals. This site is kept current, and has links
that cover a broad range of IHSS topics including eligibility, what IHSS
will pay for, etc. Also has calculators for helping with income determinations,
and a forum where you can ask questions. |
English: (HTML - Web Page)
Disability
101 FAQ for IHSS |
(3) What About IHSS?
Multiple IHSS topics. A 60 page government publication which covers
almost every aspect of the IHSS program including; eligibility, application,
assessment, services paid for, protective supervision, IHSS for children,
appeals (Hearings) etc. This document was written in 2001 but most
of the information and rules are still in use and currently applicable. |
English:
What About IHSS?
(PDF file, 60 pg. 1406 KB) |
(4) IHSS Consumer Handbook. (CA DPSS publication)
Covers many aspects of IHSS, from eligibility guidelines
and tasks IHSS will pay for, to "Share of Cost," organizational
skills, and other Consumer responsibilities. Has very
specific and detailed information for consumers on how to
train, hire, supervise, and communicate with a provider. Does
not cover the Needs Assessment process as thoroughly as resource
#1 above. |
English.
IHSS Consumer
Handbook
(PDF file, 110 pg. 3,505 KB) |
(5) IHSS Provider Handbook. (CA DPSS publication)
Duplicates much of the general program information that is in the Consumer
Handbook (above). Has additional information specific to the responsibilities
of the provider including interview skills; organizational skills; information
about various conditions which may be encountered (stroke, diabetes,
etc.); universal precautions; home safety; etc. Does not cover
the Needs Assessment process as thoroughly as resource
#1 above. |
English.
IHSS Provider
Handbook
(PDF file, 146 pg. 3,885 KB) |
(6) Protective Supervision
This document published by Protection and Advocacy Inc., is specific to
the subject of "Protective Supervision." This category of IHSS
is available for monitoring the behavior of non-self directing, confused,
mentally impaired or mentally ill persons. If eligible for this
category, the client will be authorized for 195 to 283 hrs per month.
(also see resource #3 above and resource
#11 below) |
English:
Protective Supervision
(PDF file, 8 pg. 77 KB)
Spanish:
Protective Supervision
(PFF file, 26 pg. 58 KB) |
(7) Hospital or Institutional
Assessments
Published by Protection and Advocacy Inc. County IHSS eligibility
workers must process the application of persons in hospitals, nursing homes,
and other facilities. A consumer already qualified for IHSS should
have a reassessment in their home after being hospitalized. |
English
County IHSS
Eligibility Workers Must Process the Application of Persons
In Nursing Facilities and Hospitals
(PDF file, 1 pg. 106 KB) |
(8) IHSS and Regional Center
- combined support
PAI Inc. publication. Consumers that get support from Regional centers
should not be denied IHSS because they get similar services from a Regional
Center.
|
English: (HTML - Web Page)
IHSS and Supported Living Services |
| (9) Paid Family Leave for Home Care
Providers. "All County Information Notice" (ACIN)
describing conditions where providers may be eligible for
paid family leave. |
English:
All
County Information Notice No: I-54-07
(PDF file, 2 pg.31KB) |
(10) Authorized Representative
Form
For designating a friend, relative, union representative, or advocate. |
English:
(PDF file, 1 pg. 39 KB)
Authorized Representative
Form |
(11) Doctor's form for Protective
Supervision
For your doctor to verify the need for Protective Supervision
services. |
English:
(PDF file, 1 pg 352 KB)
Doctor Form for
Protective Supervision |
| (12) Other IHSS Forms. These
are some of the actual forms used by IHSS case workers. Subjects
too numerous to list. |
English: Web Page linked with numerous PDF files
CA
Dept of Social Services Website, Forms and Publications
Scroll to where it says "IHSS" |
(13) Timesheets and Paychecks
(For IHSS Independent Providers - IP)
Sometimes a timesheet gets returned because IHSS determines that it was
not filled out properly. Pay checks can also get lost or stolen. These
problems will delay the provider's paycheck and also future paychecks if
a replacement timesheet is not requested right away. Find out how
to avoid this from happening, or how to fix it if it does. |
English: (HTML - Web Page)
Payroll and Timesheets
Spanish: (HTML - Web Page)
Nómina
ay Tarjetas de tiempo |
| (14) Your Rights Under California Welfare Programs. Government
informational pamphlet -- not specific to IHSS but does cover
some IHSS issues. |
English: 2pg brochure, 8.5x11
PDF File (140 KB)
Your Rights Under California
Welfare Programs |
(15) California Welfare & Institutions Code
Good state hearing resource. This online manual has the exact legal
language that IHSS policies are based on. |
English: Web Page
California
Welfare & Institutions Code |
(16) California Dept of Social Services Online Manual
of Policies and Procedures
This site has numerous links to PDF documents for various CDSS manuals
covering Social Services Standards, Adult Protective Services, etc. Good
state hearing resource.
|
English: (HTML - Web Page)
CDSS
Manual of Policies & Procedures |
(17) Department of Social Services All County
Letters (ACLs) and All County Information Notices (ACINs)
Of importance to IHSS stakeholders. Click on ACL
or ACIN then year, then look for IHSS topics. |
English: (HTML - Web Page)
Dept
Social Services Letters and Notices
|
(18) California Dept of Social Services (CDSS) State
Hearing Department
This website is a gold-mine of information on that includes
IHSS hearings and regulations. It has tabs guiding
you to different resources including "paraphrased regulations"
meaning layman's terms to make research easier. Decisions
and regulations pertain to many aspects of IHSS. |
English: (HTML - Web Page)
State Hearing Department |
(19) Terms & Definitions Used in IHSS and related
documents / research
Has abbreviations, and definitions of commonly used labels & phrases. |
English: (HTML - Web Page)
Terms & Definitions |
Protection
and Advocacy, Inc. (PAI)
Website: www.pai-ca.org/index.htm
Legal or advocacy questions: 1-800-776-5746 TOLL FREE
Administration: 916-488-9955
Protection and Advocacy Inc. has some very specific and in-depth
information about the IHSS program. The " IHSS
Fair Hearing and Self-Assessment Package " informs
providers and clients about their rights regarding hours,
how to apply for Protective Supervision, etc. Furthermore,
if you go to the website (above) they have translations in Spanish,
Korean, Chinese, Cambodian, Hmong, Laotion, Taglog, Thai and Vietnamese.
This site also has information on SSI, SSD, SSP, Medical, Medicare,
Medicaid, Special Education, Transportation and Assistive Technology,
and much more.
IHSS and Working: index of specific information/links
IHSS Program Description (Disability
Benefits 101) Website: http://www.disabilitybenefits101.org/
Disability Benefits 101 is a great resource website, and has a
comprehensive description of the IHSS program including eligibility
requirements, benefits, and history. Make sure to check out the
additional information links at the bottom of the page. Their FAQ
(Frequently Asked Questions) about IHSS is also very extensive:
DB101
FAQ
Also make sure to check out their Forums, where you can get answers to individual
questions:
DB101
Forums
Finally, Disability 101 also provides TRAINING for those in need of benefits planning services. Check out their training dates and locations:
DB101: Training Schedule
California Association of Public Authorities for IHSS
http://www.capaihss.org/
Public Authorities are set up by individual counties for the administration
of the IHSS program, and are specifically responsible for negotiations
over wages and benefits. The California Association of Public
Authorities has helped in the 2004 and 2005 budget fight to preserve
home care, and their website has in-depth resources for those interested
in legislation that
affects home care workers. Use this section for research
when writing your legislators.
Save Homecare
Website: http://savehomecare.org/
This is a very important site. It was created to help with the
effort to oppose the IHSS budget cuts proposed by the Governor
in 2004 and 2005. The web site provides an easy process
for people who are concerned about keeping IHSS funded, to e-mail
their local State Senator and Assembly members. The goal of the
web site is to get as many people as possible to send e-mails to
their State Senators and Assembly members.
IHSS County Specific Resources
Go to Your County,
and look up information that is specific to your particular county.
That is where you will find IHSS offices and contact numbers for
your area.
General
information and resources for care providers and their clients:
Adapt
http://www.adapt.org/
This is a national website to get informed and participate in
the fight for legislation that provides home care instead of
institutions. "There's no place like home; and we mean real homes,
not nursing homes. We are fighting so people with disabilities
can live in the community with real supports instead of being
locked away in nursing homes and other institutions."
Association of Regional Center Agencies
(ARCA)
ARCA functions as a leader and advocate in promoting
the continuing entitlement of individuals with developmental
disabilities to all services that enable full community inclusion.
http://www.arcanet.org/Default.htm
AT Network
http://www.atnet.org
Provides access to and information on assistive technologies and
related services. Assistive technologies can be anything from eyeglasses
and hearing aids to sophisticated power wheelchairs or computer
equipment.
Brown Bag Program - (a service of the CA dept. of Aging)
http://www.aging.state.ca.us/html/programs/brown_bag.html
The Brown Bag Program is a State-funded program that provides
surplus and donated edible fruits, vegetables and other food
products to low income individuals 60 years of age and older. For
information about this program in your county, call: 800-510-2020
California Department of Aging
http://www.aging.state.ca.us/index.html
This site contains information on services and support for individuals
needing or providing homecare including; Adult Day Care, Alzheimer’s
Day Care, Health Insurance Counseling and Advocacy Program, Legal
Assistance, Nutrition Services, Respite Program, Senior Companion
Program, and more.
California Disability Community Action Network (CDCAN)
http://www.cdcan.us/
The CDCAN website is a virtual meeting place for disability/aging
news and networking. They host "Town
Hall Meetings" by teleconference
that can be participated in by anyone, and listened to afterwards
by going to their Audio Archives. These meetings have valuable
information on specific issues. CDCAN
also has a great email alert network that you can sign up to free
of charge. "The
California Disability Community Action Network, is a non-partisan
link to thousands of Californians with developmental and other
disabilities, people with traumatic brain injuries, the Blind,
the Deaf, their families, community organizations and
providers, direct care, homecare and other workers, and other
advocates to provide information on state (and eventually
federal), local public policy issues."
California Foundation for Independent Living Centers
http://www.cfilc.org/site/c.ghKRI0PDIoE/b.695113/k.CB59/Home.htm
"The entire focus of the Independent Living Movement is the realization
that freedom to make choices and the ability to live in the community is a basic
civil right that should be extended to all people, regardless of disability.
With this framework, Independent Living Center staff work with and for the consumer
to promote his or her independence in the community."
Disability Benefits
101
http://www.disabilitybenefits101.org/index.htm
This site contains invaluable information for caregivers who are
helping their clients transition to work, or for clients who need
to research how work will effect their government benefits. Additionally,
there are many other resource links and information on disability
benefits: "DB101 brings together rules for health coverage,
benefit, and employment programs that people with disabilities
use. These programs may be administered by the state, the federal
government, or private organizations; here, we discuss them under
one roof, in plain language." Make sure to check out
their forum, where you can actually get answers to individual or
specific questions!
Disability Resources
http://www.disabilityresources.org/
This site is a virtual library of information about
website's serving the disability community. It includes thousands
of the best disability resources on the Internet, selected and
annotated by the staff of Disability Resources Monthly and alphabetically
arranged by subject for easy access. This is a wonderful site
because it provides helpful reviews of the sites, not merely
links.
Energy Bill Assistance
http://www.csd.ca.gov/needhelp.html
If you are low-income and are having difficulty paying your energy
bill, the Low
Income HEAP program (LIHEAP) may be able to help.
Family Caregiver Alliance; National Center on Caregiving
http://www.caregiver.org/caregiver/jsp/home.jsp
Includes pages with info and advice for care providers, public
policy and research concerning care providers, fact sheets and
publications, newsletters, groups, and much more. This is a very
extensive collection of information and resources.
Grants - The Disability Resources research page
http://www.disabilityresources.org/GRANTS.html
This is the starting place for you to research Grant opportunities
for individuals or organizations.
Health Insurance Counseling and Advocacy Program
(HICAP)
http://www.inlandagency.org/html/hicap_home.htm 1
800 434-0222
Provides information and assistance with Medicare, managed care
(HMO's), long-term care insurance and other related health insurance
issues. Trained volunteer counselors offer objective information
to help seniors and other Medicare beneficiaries make good health
care decisions.
Health Coverage in California (Foundation for Health
Coverage Education)
www.coverageforall.org
Simplifying public and private health insurance eligibility information
in order to help more people access coverage. This is the site
to get you help in finding alternative coverage if you have no
health benefits for workers in your county through IHSS.
Services
in California Call
800.234.1317
ICan
http://www.icanonline.net/
Everything from news and opinions to disability radio shows and
transportation.
Institute for Independent Living
http://www.independentliving.org/
The Independent Living Institute is an non-profit private foundation
based in Sweden. This site was included because it has an extensive
library, and sponsors many projects including listings for
accessible vacation home exchange and global networking.
National Alliance for Caregiving
http://www.caregiving.org/
The National Alliance for Caregiving is dedicated to providing
support to family caregivers and the professionals who help them.
They have a resource collection for finding the perfect book, video,
or website on caregiving issues.
National Center on Emergency Preparedness for People with
Disabilities
http://www.disabilitypreparedness.com/
This organization is focused on helping ensure that all individuals
are included in the development of and inclusion in plans for protection
from both natural and man-made emergencies.
National Council on Independent Living
http://www.ncil.org/
NCIL is a membership organization that advocates for the human
rights of, and services for, people with disabilities to further
their full integration and participation in society.
National Organization on Disability
http://www.nod.org/
The mission of the N.O.D. is to expand the participation and contribution
of the 54 million persons in America with disabilities in all aspects
of life.
National Technical Assistance Center for Latinos with Disabilities http://www.proyectovision.net/
Resources, news, opportunities, success stories, and more, as well
as specific links to Hispanic/ Latino community information & resources.
Network of Care
http://networkofcare.org/home.cfm
A comprehensive, Internet-based resource is for the elderly and
people with disabilities, as well as their caregivers and service
providers. Network of Care also has local information on
individual Counties within California.
Team
of Advocates for Special Kids (TASK)
http://www.taskca.org/
Team of Advocates for Special Kids (TASK) is a Parent Training
and Information Center that Parents & Professionals can turn
to for assistance in seeking and obtaining needed early intervention,
educational, medical or therapeutic support service for children.
The Center for An Accessible Society
http://www.accessiblesociety.org/
A national organization designed to focus public attention on disability
and independent living issues, and specializing in disability information
for journalists.
World Institute on Disability
http://www.wid.org/
This organization is dedicated to promoting the civil rights and
full societal inclusion of people with disabilities. They have
an e-newsletter which you may sign up for (at no charge), and that
has very helpful and specific information for those dealing with
disabilities or the care of the disabled/elderly.
Online magazines
for the disability community:
Disability World; http://www.disabilityworld.org/09-10_03/il/ilhistory.shtml
Mainstream; http://www.mainstream-mag.com/
New Mobility; http://www.newmobility.com/
The Mouth; http://www.mouthmag.com/
The Ragged Edge: http://www.ragged-edge-mag.com/
Books for the
disability community:
Disabilities Books
Do you need a manual on Special Needs Trust Administration? How
about inspiring personal stories written by parents of children
with disabilities or adults with disabilities? This is
the place to find those books.
http://www.disabilitiesbooks.com/
Movies/Videos
for the disability community:
PEOPLE IN
MOTION: A THREE-PART INNOVATION MINI-SERIES AIRED ON PBS.
This
is an excellent series that looks at the lives and political,
cultural, and social work of several individuals with disabilities
(including a segment on Ed Roberts and WID). To order this
video, please contact People in Motion; PO. Box 2284; Burlington,
VT 05407, or call 1-800-336-1917. For information on purchasing
People in Motion for institutional use, please call WNET Programming
Information at 212-560-2888.
OPEN FUTURES: ROLE MODELS FOR YOUTH WITH DISABILITIES
The Open Futures CD-ROM features role models who have a range
of educational backgrounds, occupations, and disabilities.
The role models
in the Open Futures videos inspire young people to explore careers
and follow their dreams. They also help parents, counselors, and
employers appreciate the value that people with disabilities bring
to the workplace.
To
order the CD-ROM or videos, contact Program Development Associates, www.disabilitytraining.com,
800-543-2119
Researching Medical
Equipment and Information:
This is an enormous field, and involves many commercial website's.
Rather than attempt to direct our members to specific sites,
at this time, we would encourage you to use the following search
engines (listed below) to conduct your research. Just enter the
name of the category you are researching - like "Vitamins",
or " Alzheimer's," or "Wheelchairs," and
you will get dozens (or thousands!) of responses.
Search Engines:
Google
Yahoo
Dogpile
Ask
Jeeves
Additional Research Portals:
Frety
Internet Research Tips:
One thing to be aware of when researching a particular medical
condition is that many sites which propose to be "informational" are actually
sponsored by drug companies who have a bias toward treating
the condition with their product. Look carefully at who is producing
the site.
Alternative, or Adjunctive treatment therapies (like herbal
medicine or acupuncture) is another field of research that holds
great promise for people who want to take responsibility for
their own health and are willing to try treatments not endorsed
by mainstream medicine. As with all other aspects of healthcare
(including mainstream medicine!) it is always necessary to use
your own judgment , get more than one opinion, and don't believe
everything you are told or that you read on the internet!
The internet is a great place to view and research the latest
medical equipment. If you are not happy with the recommendations
of your health care retailer or therapist, you can go online
and view the latest wheelchairs, commodes, and other assistive
devices that can help you and your client. Then you know what
to ask for when discussing how to get these devices through your
insurance or government assistance program.
Government
Resources and Legislation:
Understanding
UDW's Work in Sacramento. This
page of our website has an overview of how the legislative process
affects home care workers and their clients, as well as a list
of current legislation.
Legislative Updates & Reports from the
Capitol Has
the latest information on Bills affectiv home care workers as
they work they way through the legislature. Also reports
on the State Budget.
UDW
Campaigns Page,
which has resources and information about political issues
and legislation that affect home care workers.
Federal
Government
New Freedom Initiative
http://www.hhs.gov/newfreedom/
President Bush announced the New Freedom
Initiative on February 1, 2001, as part of a nationwide effort
to remove barriers to community living for people with disabilities,
and supports the principles of home care..
Federal Legislation Affecting Care Providers
Go to Legislation and Election
Issues & Research below
The Access Board
http://www.access-board.gov/
An independent Federal agency devoted to accessibility for people
with disabilities.
National Council on Disability
http://www.ncd.gov/index.html
NCD is an independent federal agency making recommendations to
the President and Congress on issues affecting Americans with disabilities.
Centers for Medicare and Medicaid Services
http://www.cms.hhs.gov/medicaid/default.asp?
This site has information and resources for people who use Medicare
or Medicaid, or who need to apply for these services.
SSI - Supplemental Security Income
http://www.ncd.gov/index.html
Since many client's of home care workers receive SSI this site
is sometimes a source of necessary information regarding SSI rules.
Social Security
http://www.ssa.gov/
Many client's of home care workers receive Social Security as their
main source of income. This site is a starting place to gather
information about Social Security rules.
State
Government
Overview of State Legislation Process
This link takes you to a page on the "Official California Legislative
Information" website, which gives a clear explanation of how the
state legislative process works.
http://www.leginfo.ca.gov/bil2lawx.html
State Legislation Affecting Home Care Workers
Go to UDW's Legistative Updates page.
Around the Capitol
This site is excellent for doing your own research; tracking particular
bills, elections, etc.
http://www.aroundthecapitol.com
California Department of Social Services, Forms Management
Unit
http://www.dss.cahwnet.gov/lettersnotices/default.htm
Has "All County Letters" and "All County Information
Notices" both of which often apply to IHSS and MediCal.
California State Website
http://www.ca.gov/state/portal/myca_homepage.jsp
California Governor's Website
http://www.ca.gov/state/portal/myca_homepage.jsp
California State Assembly
http://www.assembly.ca.gov
California State Senate
http://www.sen.ca.gov
California Department of Health & Human Services
http://www.chhs.ca.gov/
California Department of Social Services
http://www.dss.cahwnet.gov/
California State Association of Counties
http://csac.counties.org
Centers for Medicare and Medicaid Services
http://www.cms.hhs.gov/states/
Legislation
and Election Issues & Research
How Legislation Impacts Home Care Workers
Understanding
UDW's Work in Sacramento describing
how legislation affects homecare workers and their clients. This
page will also give you background on the State budget and homecare
as well as the basic legislation that formed our present homecare
system.
For specific
information on current bills, the current budget and its affect
on homecare, and specific reports on legislative issues from
advocacy "watchdogs" like
CDCAN, go to UDW's Legislative Updates
and Reports from the Capitol This page also
has a link to a schematic showing How
a Bill Becomes a Law (PDF file),
with the current legislative calendar.
Find out about your representatives - both
before and after they're elected!
AFSCME
legislator search To find names and contact
information for all your elected officials, including the
president, members of Congress, governors, state legislators,
and more, click the link above then scroll to bottom of page
where it says "Look up Elected Officials" and enter
your zip code. The above page also has a "Congressional
Scorecard" feature
for looking up your elected representatives record, and "View
Candidates for Office" so that you can research candidates before
you vote.
California Association of Public Authorities for IHSS
California
PA (IHSS) - legislation pages Public Authorities are
set up by individual counties for the administration of the
IHSS program. The California Association of Public Authorities
has helped in the 2004 and 2005 budget fight to preserve home
care, and their website has in-depth resources for those interested
in legislation that affects home care workers. Use
this section for research when writing your legislators. It
has targeted documentation of current legislative issues that
affect home care workers in California.
Family Caregiver Alliance
Caregiving PolicyDigest also tracks some legislation that
is of relevance to home care workers.
Around the Capitol
This site is excellent for doing your own research; tracking particular
bills, elections, etc.
http://www.aroundthecapitol.com
Overview of State Legislation Process
http://www.leginfo.ca.gov/bil2lawx.html
The above link takes you to a page on the "Official California
Legislative Information" website (http://www.leginfo.ca.gov),
which gives a clear explanation of how the state legislative process
works.
AFSCME - UDW National Affiliate: "We are AFSCME," the
American Federation of State, County and Municipal Employees.
AFSCME is the nation's largest and fastest growing public service
employees union. We are 1.4 million members strong and are made
up of people who serve the public every day in all areas of government,
health, education and other services, both public and private.
http://www.afscme.org/index.cfm
NUHHCE - UDW National Affiliate: The National Union of
Hospital and Healthcare Employees.
http://www.nuhhce.org/
AFL-CIO - UDW National Affiliate: The mission of the
AFL-CIO is to improve the lives of working families—to bring
economic justice to the workplace and social justice to our nation.
To accomplish this mission we will build and change the American
labor movement.
http://www.aflcio.org/
Also check out their new blog: http://www.aflcio.org/blog
San Diego - Imperial Counties Labor Council Website:
-- The San Diego-Imperial Counties Labor Council is a central
body affiliate of the AFL-CIO and was founded in 1902. It includes
approximately 110 affiliated labor groups within San Diego and
Imperial Counties. Our members are the men and women who comprise
100,000 working families.
www.unionyes.org
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