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Home > Provider Resources

Provider Resources & Advocacy
Also see: Frequently Asked Questions
Call our Member Communication Center to have specific questions answered in person. We have Spanish and Vietnamese speaking personnel.
Check out the UDW/AFSCME Member Benefits for home care workers.
And of course, our Client Resources Page

March 2008: For client/consumers of IHSS who want to earn money, save their earnings, and still keep their IHSS and Medi-Cal: WRITE LETTERS OF SUPPORT TO YOUR LEGISLATORS NOW for AB851 (new California Working Disabled legislation). 
More information

Quick-links for this page:

This is a "portal" page; a list of links AND RESEARCH that has been gathered to help home care workers and their clients find the help and resources they need.

At UDW we understand that home care workers have an enormous array of responsibilities attached to their job, and that the work can be endless and at times exhausting. As a home care worker, cooking cleaning and domestic chores are often only the beginning of your responsibilities. Sometimes home care workers need help with paperwork, appointments, and advocacy for their client's government support. Your client's medical therapies can call for knowledge in the areas of nutrition, physical therapy, and/or specialized medical equipment. Some clients also need emotional support or counseling. With recipients that are "shut-ins," you are at times their only link to the outside world. On top of all the requirements of your clients, there are the political issues that could cut funding or even eliminate home care worker's jobs.

Sometimes it just helps to know that you are not alone, and you are not crazy!   The good news is that there are resources and help available to you.  UDW has put together a list of resources for home care workers and their clients, which will help you to find the right information or service, with minimal investment of your time. We can not exhaustively research every website ourselves (please read the disclaimer below carefully), but we can give you a place to start from, and hopefully our work will make yours a little easier and less time consuming.


Disclaimer
By providing the following information and links to other sites, United Domestic Workers of America does not in any way guarantee, approve or endorse the information or products available at these sites, nor does a link indicate any association with or endorsement by the linked site to UDW. We are making these resources available so that home care workers and their clients may streamline their research process as well as network on local, state, and national levels.  Information about IHSS rules or legal issues given on this site are meant strictly to be a research starting point and are subject to current rules and law.  While we try to publish the most current information available, the laws & rules that govern IHSS are complex and do change.  Always use professional advice and verify all information to make sure it is current before making changes that might affect your eligibility.


PAID FAMILY LEAVE FOR
HOME CARE PROVIDERS

California Paid Family Leave (PFL) program,” is an enhancement to the State Disability Insurance Program (SDI).  It is intended to create a family temporary disability insurance program to help reconcile the demands of work and family for eligible California workers. 

Home care providers who must leave work (their IHSS consumer) to care for a seriously ill parent, child, spouse, registered domestic partner, or bond with a new minor child are eligible.  PFL can be used for a maximum of 6 weeks in a 12 month period.  The provider will receive partial payment based on the prior quarter's earnings -- approximately 55% of lost wages.

Only those IHSS providers who have paid in to SDI are eligible.  Family member providers (mother, father, son, daughter, brother, sister) do not pay in to SDI unless they elect to do so.  Other providers pay in automatically.  Home care providers can see on their pay stub whether SDI is being deducted.  PFL is administrated by the state Employment Development Department (EDD) and applications are filed with them.

It is important not to leave your client/consumer without a home care provider if you use PFL.  The consumer should be given as much notice as possible so that s/he can arrange for a replacement.  The consumer is not required to hire the original home care provider once s/he has completed the PFL so it is important to talk this over together and come to a clear understanding.

Providers should also check their county's health care benefit policy if they are using the health benefit provided with IHSS.  PFL should not jeopardize their coverage if the county policy allows 3 months before they are termed out (due to hours falling below the requirement).

More information
http://www.edd.ca.gov/fleclaimpfl.htm  (Employment Development Website)
All County Information Notice  (PDF file)
Call (English): 1-877-238-4373   (Spanish):1-877-379-3819   TTY 1-800-563-2441

 

Information specifically related to the IHSS (In Home Supportive Services) program:

FAQ for Understanding the Annual Needs Assessment, Fair Hearing Process, and other
IHSS Regulations
please make sure to read disclaimer above

Eligibility, Annual Reviews and IHSS Hours;
what you need to know and where to find it:

Since consumers (recipients) of IHSS have their hours authorized (set) during the assessment process, it is important that homecare providers also understand that procedure and be present to advocate for their client when necessary.  In fact, the provider (home care worker) can and should ask for their client to have a re-assessment if they observe changes in the consumer's condition.  This informs the social worker so that they understand exactly what the consumer needs to live safely and remain healthy in their own home. The resources listed below in the Advocacy Resources, Appendix will help both consumers and providers understand the assessment process, fair hearings, eligibility, share of cost, and other aspects of the IHSS program.
The key to an accurate assessment is understanding the rights of the consumer, and also having the correct records (paperwork).  The topics below will help both consumers and providers understand the Needs Assessment and Fair Hearing processes.  At the end of each topic there is a reference to the resource(s) where that subject is covered in more detail: Advocacy Resources, Appendix   

  • Preparing for an Assessment or Review; know your rightsFor your information, maximum IHSS hours allowed are 283 per month.  IHSS only pays for specific tasks and you can not ask for time to do things that are not authorized (example; watering plants).  The hours authorized for each consumer vary according to the case worker's assessment of the consumer's needs.  This assessment is the case worker's interpretation of the law.  Although case workers use guidelines to determine the hours for each authorized task, they are still required by law to adjust time for task allowance (provide additional time) if it can be shown why it is necessary.  If the case worker does not do this the consumer (or their representative) can ask for a hearing (appeal) before an administrative law judge.  Also for your information, there is a category of IHSS called Protective Supervision (see below) that will authorize a "qualified" consumer for 195-283 hours.
    References (Appendix 1,3,4,6,7,8,10,18)
  • "Log" Your Time: To make sure the consumer's rights are upheld and he/she gets the hours they are entitled to, keep a diary (log) of the actual time it takes to complete each task over a minimum two week period.  Since the time required often changes with the condition of the consumer, this allows the case worker to average the "good" days with the "bad" ones.  Make sure to make notes about why time is necessary i.e. "Recipient eats in bed, therefore bed must be cleaned & vacuumed 3 times a day," or "Respiratory condition requires extra cleaning for dust-free environment."   The PAI Package (Appendix 1) below includes complete instructions and worksheets to help you keep track of the tasks and which ones IHSS will pay for. 
    (Appendix 1,3,5)
  • How to ask for documentation from your doctor and other health care professionals:  IHSS uses specific forms that you need to take to the consumer's doctor and have him sign.  The case worker should give or mail you these forms, although some are available online.  For personal care services like bathing and feeding etc, use the log (record) you create to make a list of the tasks which the consumer must have assistance with to live safely in their own home.  Most doctors do not know these personal details about their patients, even when they know their medical condition.  Give the doctor your written record, and ask him or her to verify it and give you a signed paper that states the consumer's needs.  The doctor can verify any of these specific needs with your client through physical examination / office visit if necessary.  Do not ask the doctor to verify how long it takes to do each task.  You are asking for a clear list of the types of services that the consumer needs to live safely in their own home, based on the consumer's physical capacity.  Also get additional documentation for the consumer's diagnosis, medications prescribed, and any other assistance prescribed by the doctor (like physical therapy, injections, use of catheter/colostomy etc.)  All these things should be documented by the doctor as necessary.  
    (Appendix 1,3,6,10,11,12,18)
  • What IHSS will pay for:  All IHSS hourly "Needs Assessments" are based on what is required for health and safety (not comfort or companionship).  Examples of "need" include personal care services; ambulation (helping client move), bathing, bowel & bladder care, dressing, feeding, medications, etc, and domestic & related chores (cleaning, food preparation & menu planning, laundry, shopping, etc).  Para-medical services, medical transportation, respite (to relieve a non-IHSS family care provider) and protective supervision, are other types of services IHSS will cover.  The exact categories and tasks that IHSS will pay for are listed in
    Appendix (1, 2, 3,4,5,6, 7,8,18)
  • The consumer has a right to have an authorized representative present at the Needs Assessment, or at a Fair Hearing .  Consumers are often embarrassed or intimidated about revealing what they can not do for themselves during the assessment process.  IHSS case workers usually want to question the consumer directly (not the home care provider) about what they can do or can not do.  However in some cases the consumer is not mentally or physically able to answer questions accurately.   It is important that there be a witness or advocate present during the Needs Assessment process.  This can be the home care provider, AND/OR a union representative OR a friend, OR a family member, OR an attorney, OR an advocate from the community. 
    If the home care provider is advocating (speaking) for their client it is important to address the case worker about the consumer's needs -- not your own need for additional hours. This distinction must be very clear.
    Your local Office on Aging, or Independent Living Center can often provide an advocate free of charge.  Consumers may also have someone represent them at a hearing before an administrative law judge (if the assessment is disputed).  The consumer needs to authorize their representative by providing a signed, dated paper, stating that the person is authorized to represent the IHSS consumer.  The resources below will have additional information about finding an advocate in your area if you need one.
    Appendix (1,2, 3,4,5,10,14,18)
  • When to ask for a Re-Assessment: The consumer or the home care worker can ask for a re-assessment at any time if the consumer's condition has changed, or if the consumer or their representative(s) don't agree with an assessment given by the case worker.  The consumer should get a "Notice of Action" within 30 days after the IHSS case worker visits them in their home for an assessment.  If the county plans to reduce or deny services then they are required by law to mail the NOA 10 days before the reduction or denial takes effect.  When a "Notice of Action" (NOA) has been received that shows a reduction of hours, do the paperwork for the appeal immediately because there is a 10 day deadline to keep the same hours while waiting for a hearing.  Also it will help if the case worker understands you are willing to take the case to hearing. 
    Because IHSS case workers often have large case loads, it is sometimes hard to get them to return your phone calls, when asking for a re-assessment.  In this circumstance use a certified letter (that requires a signature on receipt).  You may also ask to speak with the case worker's supervisor.   Always write down the name of who you talk to, and when you talked with them. 
    The re-assessment is particularly important if the IHSS consumer has been in the hospital, as additional care such as assistance with physical therapy or apparatus such as catheters are often needed.  The client's IHSS case worker should be informed as soon as the client is admitted to the hospital, and should do a re-assessment as soon as they are sent home.
    A re-assessment should also take place if the consumer moves, because the accessibility level in a home affects time for task determination.  Also you should know that if the consumer moves to a different county the rate of pay may be different as well as the needs assessment.  To see rates of pay in different counties go to our Statewide Information page. You can find additional information for UDW counties by clicking the name of the county on our County Pages.
    Appendix (1,3,4,5,6,7,8,18)
  • Understanding the Notice of Action (NOA):  The "Notice of Action" is a legal document that the consumer should get in the mail after having an assessment (or annual re-assessment) in their home.  If the county denies or intends to change a person's IHSS services, the county must give a written notice to that person.   Except in a few limited circumstances (like death or institutionalizing of the consumer) the county is legally required to mail the NOA at least 10 days before the effective date of the action.  In cases where there is no change in services the county may take up to 30 days to send the NOA. 
    Since there are time deadlines involved in appeals, make sure to pursue this document by calling your IHSS regional office if the NOA has not been received.  The NOA is a piece of paper that has "Notice of Action" written on it.  The NOA states exactly how many hours per month the consumer has been authorized, and how much time is authorized for each task.  The paper will list the tasks and name them (like "feeding," or "dressing"), as well as naming the category (like "Personal Care," or "Domestic").  The NOA will also have a date at the top telling when the authorization of hours becomes effective.  This date is very important when asking for an appeal.  On the back of the NOA is a place to ask for an appeal, and the address where the request for appeal is sent.  (Appendix 1,2,3,4,5,18)
  • How to Appeal -- Ask for a Fair Hearing before an Administrative Law Judge.  When the consumer has hours authorized by an IHSS case worker, this assessment is the case worker's interpretation of the law.  Asking for a "Fair Hearing" is how you ask for a higher authority to re-assess the case when the consumer -- or his/her representative(s) -- don't agree with what the IHSS social worker decided.  The Fair Hearing takes place before an administrative law judge.  This administrative law judge is highly trained in the law that covers your case, and also trained to be fair and impartial.  The Fair Hearing process does require more paperwork, but you can get someone to help you.  It is important to prepare for a hearing (resources #1 and #3 in the Appendix cover hearings in detail).  The consumer or their representative should appear in person for the hearing.
    How to get started: The consumer should get a "Notice of Action" in the mail within 30 days of the case worker's home visit (assessment).  This Notice of Action lists exactly which tasks the consumer is authorized for and how much time is authorized for each task.  On the back of the document is the portion that can be filled out for an appeal (Fair Hearing) and the address where the appeal form is mailed.  The Notice of Action also has a date that the new authorized hours take effect.  It is necessary to fill out the request for appeal within 10 days of that date and ask for "Aid Paid Pending" if the consumer's hours were reduced.  The consumer should always keep a copy of the Notice of Action (after the Appeal portion is filled out) for their own records.  If you are representing the consumer in a fair hearing, ask their permission to keep a copy for your own records.  If the consumer's hours have been reduced, it is even more important to act quickly (see below).  Sometimes when you ask for an appeal, an IHSS supervisor will decide to re-examine the case worker's Needs Assessment before going through the Fair Hearing process, and adjustments can also be made at that stage.  The consumer always has the right to appeal decisions of the case worker or IHSS supervisor, before an administrative law judge. Appendix (1, 3,4,5,10,14,18)
  • How to keep the same hours while waiting for a Hearing: Ask for an appeal, and state that you want " AID PAID PENDING" (in writing) 10 days BEFORE the effective date on the Notice of Action.  Make sure to keep a copy.   This means the consumer can keep the same hours until they go to a hearing.  Sometimes it takes weeks or months to complete the Fair Hearing process.  The Aid Paid Pending the decision will not be considered an overpayment (you will not need to pay it back) even if the judge decides in favor of the county,
    Appendix (1, 3, 14,18)
  • Do you have a client that can't be left alone? They may qualify for Protective Supervision  This category is for monitoring the behavior of non self-directing, confused, mentally impaired, or mentally ill persons (examples; Alzheimer's patients or the developmentally disabled).   Protective Supervision is not based on physical disability, but on mental disability; where the person may harm themselves or others if left alone.   Protective Supervision will qualify the consumer for 195-283 hours.  Because this category is based on mental conditions it requires very specific documentation. IHSS case worker's are supposed to inform home care providers about Protective Supervision.
    Appendix (1,2,3,5,6,18)
  • Do you know someone that needs In Home Supportive Services?  The In-Home Supportive Services program (IHSS) is designed to keep low income persons living in their own homes and communities whenever possible, rather than being institutionalized.  The IHSS program does not provide 24-hour assistance.  Someone with mental limitations who needs continuous supervision 24 hours a day, or who needs round-the-clock nursing care, may be denied IHSS coverage unless family, or other community resources cover the unpaid hours.  However if having a home care provider come in and help during the day will prevent nursing home or institutional placement then they should apply for IHSS.  Appendix (1,2,3,4,6,7,8,18)
  • Who is eligible for IHSS, and how do they apply? 
    A person is eligible for IHSS who is a California resident, living in his/her own home and who meets one of the following:
    • Currently receives SSI/SSP benefits and Medi-Cal linked to SSI or 1619(b) Medi-Cal;
    • Receives Medi-Cal with no share of cost including through institutional deeming, or the continuous eligibility for children program, or the Aged and Disabled Federal Poverty Level Program, or the 250% Working Disabled Program;
    • Receives Medi-Cal with a share of cost.
    • Is eligible for Medi-Cal but has not applied.
    Otherwise eligible applicants who are currently institutionalized or living in a licensed residential arrangement but wish to live in their own home and are capable of doing so if IHSS is provided, should also apply.
    If you are not sure, but the person is low income and needs help, then contact your local In Home Supportive Services Public Authority (find their listing in Your County)   Your local IHSS Public Authority will tell you how to apply.  The document "What About IHSS" (Appendix document 3 ) has very complete information about eligibility and the application process and can help you gather the correct paperwork. Appendix (1,2,3,4,5,7,8,18)
  • Do you know someone who wants to work as a home care provider, or do you need another client?  Most counties provide an IHSS Registry designed to match home care providers with consumers (recipients).  Often you must attend training or orientation meetings and complete a background check to be on the registry.  Contact the IHSS Public Authority in your county
    Appendix (1,3,5)
  • What benefits and responsibilities come with being a home care provider?
    Home care providers pay in to and may become eligible for social security, and Medicare benefits.  These deductions are automatically made by the state payroll agency.  Some providers pay in to and may become eligible for state disability insurance (SDI), unemployment insurance (UI), and worker's compensation benefits.  Family members (mother, father, sister, brother, etc.) must elect to pay in to the above three insurance/benefit programs (the deductions are not made automatically when the provider is a family member).  It may be important for family members to be covered under these programs if they are injured on the job or loose their job.  Additionally, Paid family leave (an enhancement to SDI) may be available under state disability for eligible workers who have paid in to SDI. 
    If the provider works in a county represented by a union, with a contract that includes healthcare, then providers (home care workers) will be eligible for medical benefits under the terms of the contract.  There is usually a small co-pay.  If the contract includes "agency shop" (which most contracts have), then union dues will be automatically deducted from the providers paycheck.  There are additional benefits to being a union member.  For UDW counties get more information here for dues and union member-benefits; for information on wages and medical benefits go to Your County and click on the name of your county in the list or on the map.
    Home care providers are providing a service for pay - therefore they are responsible to pay income taxes if their income is high enough.  Income tax withholding (automatic deduction from paycheck) is available but not mandatory. The provider must request the county to withhold state and federal taxes from their pay if he or she wants this done.  If tax withholding is not requested, wages may still have to be reported and taxes paid depending on income level and/or tax status.  Also depending on income level & tax status, the home care provider may be eligible for Earned Income Credit (EIC).  This may be a reduction of income taxes or a cash benefit if the provider has low income and does not pay income taxes.  For more information on the EIC contact your local IRS office or your tax consultant and ask for a form W-5. 
    Appendix (1,2,3,4,5,18)

 

References; Advocacy Resource Appendix
(links to PDF documents and web pages)

Issue/Document Description
Document Link(s)

(1) IHSS Fair Hearing and Self-Assessment Package
Multiple IHSS topics, has 2006 update that details changes made to the program.
This is a key resource document published by Protection and Advocacy Inc. If you are confused by all the resources and only look at one - this should be that one.  It has detailed information and worksheets to prepare for an IHSS Initial Intake, Annual Assessment or Hearing before an administrative law judge.
Also covers the subjects of Protective Supervision, Paramedical Services, Children with developmental disabilities, psychiatric diagnosis, and other categories of IHSS eligibility.
One of the features of this package is that it describes reasons which IHSS case workers use to deny benefits, and what you need to say in response to clarify why the benefits are justified.

English (Includes 2006 update)
IHSS Fair Hearing and Self-Assessment Package
(PDF file, 29 pg, 224 KB)
View as web page
Spanish:
IHSS Fair Hearing and Self-Assessment Package

(PDF file, 26 pg. 227 KB)
Vietnamese:
IHSS Fair Hearing and Self-Assessment Package
(PDF file, 327 KB)

Other languages available on the PAI website.

(2) Disability 101 Website; IHSS
Multiple IHSS topics.  A user-friendly resource designed for non-professionals as well as professionals.  This site is kept current, and has links that cover a broad range of IHSS topics including eligibility, what IHSS will pay for, etc.  Also has calculators for helping with income determinations, and a forum where you can ask questions.
English: (HTML - Web Page)
Disability 101 FAQ for IHSS
(3) What About IHSS?
Multiple IHSS topics.  A 60 page government publication which covers almost every aspect of the IHSS program including; eligibility, application, assessment, services paid for, protective supervision, IHSS for children, appeals (Hearings) etc.  This document was written in 2001 but most of the information and rules are still in use and currently applicable.
English:
What About IHSS?

(PDF file, 60 pg. 1406 KB)
(4) IHSS Consumer Handbook. (CA DPSS publication)
Covers many aspects of IHSS, from eligibility guidelines and tasks IHSS will pay for, to "Share of Cost," organizational skills, and other Consumer responsibilities.  Has very specific and detailed information for consumers on how to train, hire, supervise, and communicate with a provider.  Does not cover the Needs Assessment process as thoroughly as resource #1 above.
English.
IHSS Consumer Handbook
(PDF file, 110 pg. 3,505 KB)
(5) IHSS Provider Handbook. (CA DPSS publication)
Duplicates much of the general program information that is in the Consumer Handbook (above).  Has additional information specific to the responsibilities of the provider including interview skills; organizational skills; information about various conditions which may be encountered (stroke, diabetes, etc.); universal precautions; home safety; etc.  Does not cover the Needs Assessment process as thoroughly as resource #1 above.
English.
IHSS Provider Handbook
(PDF file, 146 pg. 3,885 KB)
(6) Protective Supervision
This document published by Protection and Advocacy Inc., is specific to the subject of "Protective Supervision." This category of IHSS is available for monitoring the behavior of non-self directing, confused, mentally impaired or mentally ill persons.  If eligible for this category, the client will be authorized for 195 to 283 hrs per month.
(also see resource #3 above and resource #11 below)

English:
Protective Supervision

(PDF file, 8 pg. 77 KB)
Spanish:
Protective Supervision

(PFF file, 26 pg. 58 KB)

(7) Hospital or Institutional Assessments
Published by Protection and Advocacy Inc.  County IHSS eligibility workers must process the application of persons in hospitals, nursing homes, and other facilities.  A consumer already qualified for IHSS should have a reassessment in their home after being hospitalized.
English
County IHSS Eligibility Workers Must Process the Application of Persons In Nursing Facilities and Hospitals
(PDF file, 1 pg. 106 KB)
(8) IHSS and Regional Center - combined support
PAI Inc. publication.  Consumers that get support from Regional centers should not be denied IHSS because they get similar services from a Regional Center.
English: (HTML - Web Page)
IHSS and Supported Living Services
(9) Paid Family Leave for Home Care Providers.  "All County Information Notice" (ACIN) describing conditions where providers may be eligible for paid family leave. English:
All County Information Notice No: I-54-07
(PDF file, 2 pg.31KB)
(10) Authorized Representative Form
For designating a friend, relative, union representative, or advocate.

English:
(PDF file, 1 pg. 39 KB)
Authorized Representative Form

(11) Doctor's form for Protective Supervision
For your doctor to verify the need for Protective Supervision services.
English:
(PDF file, 1 pg 352 KB)
Doctor Form for Protective Supervision
(12) Other IHSS Forms.  These are some of the actual forms used by IHSS case workers.  Subjects too numerous to list.   English: Web Page linked with numerous PDF files
CA Dept of Social Services Website, Forms and Publications
Scroll to where it says "IHSS"
(13) Timesheets and Paychecks
(For IHSS Independent Providers - IP)

Sometimes a timesheet gets returned because IHSS determines that it was not filled out properly.  Pay checks can also get lost or stolen.  These problems will delay the provider's paycheck and also future paychecks if a replacement timesheet is not requested right away.  Find out how to avoid this from happening, or how to fix it if it does.

English: (HTML - Web Page)
Payroll and Timesheets

Spanish: (HTML - Web Page)
Nómina ay Tarjetas de tiempo

(14) Your Rights Under California Welfare Programs.   Government informational pamphlet -- not specific to IHSS but does cover some IHSS issues. English: 2pg brochure, 8.5x11
PDF File (140 KB)
Your Rights Under California Welfare Programs
(15) California Welfare & Institutions Code
Good state hearing resource.  This online manual has the exact legal language that IHSS policies are based on.
English: Web Page
California Welfare & Institutions Code
(16) California Dept of Social Services Online Manual of Policies and Procedures
This site has numerous links to PDF documents for various CDSS manuals covering Social Services Standards, Adult Protective Services, etc. Good state hearing resource.
English: (HTML - Web Page)
CDSS Manual of Policies & Procedures
(17)  Department of Social Services All County Letters (ACLs) and All County Information Notices (ACINs)
Of importance to IHSS stakeholders.  Click on ACL or ACIN then year, then look for IHSS topics.

English: (HTML - Web Page)
Dept Social Services Letters and Notices

(18) California Dept of Social Services (CDSS) State Hearing Department
This website is a gold-mine of information on that includes IHSS hearings and regulations.  It has tabs guiding you to different resources including "paraphrased regulations" meaning layman's terms to make research easier.  Decisions and regulations pertain to many aspects of IHSS.
English: (HTML - Web Page)
State Hearing Department
(19) Terms & Definitions Used in IHSS and related documents / research
Has abbreviations, and definitions of commonly used labels & phrases.
English: (HTML - Web Page)
Terms & Definitions

 

Protection and Advocacy, Inc. (PAI)
Website: www.pai-ca.org/index.htm
Legal or advocacy questions: 1-800-776-5746 TOLL FREE
Administration: 916-488-9955
Protection and Advocacy Inc. has some very specific and in-depth information about the IHSS program. The " IHSS Fair Hearing and Self-Assessment Package " informs providers and clients about their rights regarding hours, how to apply for Protective Supervision, etc. Furthermore, if you go to the website (above) they have translations in Spanish, Korean, Chinese, Cambodian, Hmong, Laotion, Taglog, Thai and Vietnamese. This site also has information on SSI, SSD, SSP, Medical, Medicare, Medicaid, Special Education, Transportation and Assistive Technology, and much more.

IHSS and Working: index of specific information/links

IHSS Program Description (Disability Benefits 101) Website: http://www.disabilitybenefits101.org/
Disability Benefits 101 is a great resource website, and has a comprehensive description of the IHSS program including eligibility requirements, benefits, and history. Make sure to check out the additional information links at the bottom of the page. Their FAQ (Frequently Asked Questions) about IHSS is also very extensive:
DB101 FAQ
Also make sure to check out their Forums, where you can get answers to individual questions:
DB101 Forums
Finally, Disability 101 also provides TRAINING for those in need of benefits planning services. Check out their training dates and locations:
DB101: Training Schedule

California Association of Public Authorities for IHSS
http://www.capaihss.org/
Public Authorities are set up by individual counties for the administration of the IHSS program, and are specifically responsible for negotiations over wages and benefits.  The California Association of Public Authorities has helped in the 2004 and 2005 budget fight to preserve home care, and their website has in-depth resources for those interested in legislation that affects home care workers.  Use this section for research when writing your legislators.

Save Homecare
Website: http://savehomecare.org/
This is a very important site. It was created to help with the effort to oppose the IHSS budget cuts proposed by the Governor in 2004 and 2005. The web site provides an easy process for people who are concerned about keeping IHSS funded, to e-mail their local State Senator and Assembly members. The goal of the web site is to get as many people as possible to send e-mails to their State Senators and Assembly members.

IHSS County Specific Resources
Go to Your County, and look up information that is specific to your particular county. That is where you will find IHSS offices and contact numbers for your area.


General information and resources for care providers and their clients:

Adapt
http://www.adapt.org/
This is a national website to get informed and participate in the fight for legislation that provides home care instead of institutions. "There's no place like home; and we mean real homes, not nursing homes. We are fighting so people with disabilities can live in the community with real supports instead of being locked away in nursing homes and other institutions."

Association of Regional Center Agencies (ARCA)
ARCA functions as a leader and advocate in promoting the continuing entitlement of individuals with developmental disabilities to all services that enable full community inclusion.
http://www.arcanet.org/Default.htm

AT Network
http://www.atnet.org
Provides access to and information on assistive technologies and related services. Assistive technologies can be anything from eyeglasses and hearing aids to sophisticated power wheelchairs or computer equipment.

Brown Bag Program - (a service of the CA dept. of Aging)
http://www.aging.state.ca.us/html/programs/brown_bag.html
The Brown Bag Program is a State-funded program that provides surplus and donated edible fruits, vegetables and other food products to low income individuals 60 years of age and older. For information about this program in your county, call: 800-510-2020

California Department of Aging
http://www.aging.state.ca.us/index.html
This site contains information on services and support for individuals needing or providing homecare including; Adult Day Care, Alzheimer’s Day Care, Health Insurance Counseling and Advocacy Program, Legal Assistance, Nutrition Services, Respite Program, Senior Companion Program, and more.

California Disability Community Action Network (CDCAN)
http://www.cdcan.us/
The CDCAN website is a virtual meeting place for disability/aging news and networking.  They host "Town Hall Meetings" by teleconference that can be participated in by anyone, and listened to afterwards by going to their Audio Archives. These meetings have valuable information on specific issues.  CDCAN also has a great email alert network that you can sign up to free of charge.  "The California Disability Community Action Network, is a non-partisan link to thousands of Californians with developmental and other disabilities, people with traumatic brain injuries, the Blind, the Deaf,  their families, community organizations and providers, direct care, homecare and other workers, and other advocates to provide information on state (and eventually federal), local public policy issues." 

California Foundation for Independent Living Centers
http://www.cfilc.org/site/c.ghKRI0PDIoE/b.695113/k.CB59/Home.htm
"The entire focus of the Independent Living Movement is the realization that freedom to make choices and the ability to live in the community is a basic civil right that should be extended to all people, regardless of disability. With this framework, Independent Living Center staff work with and for the consumer to promote his or her independence in the community."

Disability Benefits 101
http://www.disabilitybenefits101.org/index.htm
This site contains invaluable information for caregivers who are helping their clients transition to work, or for clients who need to research how work will effect their government benefits. Additionally, there are many other resource links and information on disability benefits: "DB101 brings together rules for health coverage, benefit, and employment programs that people with disabilities use. These programs may be administered by the state, the federal government, or private organizations; here, we discuss them under one roof, in plain language." Make sure to check out their forum, where you can actually get answers to individual or specific questions!

Disability Resources
http://www.disabilityresources.org/
This site is a virtual library of information about website's serving the disability community. It includes thousands of the best disability resources on the Internet, selected and annotated by the staff of Disability Resources Monthly and alphabetically arranged by subject for easy access. This is a wonderful site because it provides helpful reviews of the sites, not merely links.

Energy Bill Assistance
http://www.csd.ca.gov/needhelp.html
If you are low-income and are having difficulty paying your energy bill, the Low Income HEAP program (LIHEAP) may be able to help.

Family Caregiver Alliance; National Center on Caregiving
http://www.caregiver.org/caregiver/jsp/home.jsp
Includes pages with info and advice for care providers, public policy and research concerning care providers, fact sheets and publications, newsletters, groups, and much more. This is a very extensive collection of information and resources.

Grants - The Disability Resources research page
http://www.disabilityresources.org/GRANTS.html
This is the starting place for you to research Grant opportunities for individuals or organizations.

Health Insurance Counseling and Advocacy Program (HICAP)
http://www.inlandagency.org/html/hicap_home.htm 1 800 434-0222
Provides information and assistance with Medicare, managed care (HMO's), long-term care insurance and other related health insurance issues. Trained volunteer counselors offer objective information to help seniors and other Medicare beneficiaries make good health care decisions.

Health Coverage in California (Foundation for Health Coverage Education)
www.coverageforall.org
Simplifying public and private health insurance eligibility information in order to help more people access coverage. This is the site to get you help in finding alternative coverage if you have no health benefits for workers in your county through IHSS.
Services in California Call 800.234.1317

ICan
http://www.icanonline.net/
Everything from news and opinions to disability radio shows and transportation.

Institute for Independent Living
http://www.independentliving.org/
The Independent Living Institute is an non-profit private foundation based in Sweden. This site was included because it has an extensive library, and sponsors many projects including listings for accessible vacation home exchange and global networking.

National Alliance for Caregiving
http://www.caregiving.org/
The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them. They have a resource collection for finding the perfect book, video, or website on caregiving issues.

National Center on Emergency Preparedness for People with Disabilities
http://www.disabilitypreparedness.com/
This organization is focused on helping ensure that all individuals are included in the development of and inclusion in plans for protection from both natural and man-made emergencies.

National Council on Independent Living
http://www.ncil.org/
NCIL is a membership organization that advocates for the human rights of, and services for, people with disabilities to further their full integration and participation in society.

National Organization on Disability
http://www.nod.org/
The mission of the N.O.D. is to expand the participation and contribution of the 54 million persons in America with disabilities in all aspects of life.

National Technical Assistance Center for Latinos with Disabilities http://www.proyectovision.net/
Resources, news, opportunities, success stories, and more, as well as specific links to Hispanic/ Latino community information & resources.

Network of Care
http://networkofcare.org/home.cfm
A comprehensive, Internet-based resource is for the elderly and people with disabilities, as well as their caregivers and service providers.  Network of Care also has local information on individual Counties within California.

Team of Advocates for Special Kids (TASK)
http://www.taskca.org/
Team of Advocates for Special Kids (TASK) is a Parent Training and Information Center that Parents & Professionals can turn to for assistance in seeking and obtaining needed early intervention, educational, medical or therapeutic support service for children.

The Center for An Accessible Society
http://www.accessiblesociety.org/
A national organization designed to focus public attention on disability and independent living issues, and specializing in disability information for journalists.

World Institute on Disability
http://www.wid.org/
This organization is dedicated to promoting the civil rights and full societal inclusion of people with disabilities. They have an e-newsletter which you may sign up for (at no charge), and that has very helpful and specific information for those dealing with disabilities or the care of the disabled/elderly.

 


Online magazines for the disability community:

Disability World; http://www.disabilityworld.org/09-10_03/il/ilhistory.shtml
Mainstream;
http://www.mainstream-mag.com/
New Mobility;
http://www.newmobility.com/
The Mouth;
http://www.mouthmag.com/
The Ragged Edge: http://www.ragged-edge-mag.com/


Books for the disability community:

Disabilities Books
Do you need a manual on Special Needs Trust Administration? How about inspiring personal stories written by parents of children with disabilities or adults with disabilities?  This is the place to find those books.
http://www.disabilitiesbooks.com/


Movies/Videos for the disability community:

PEOPLE IN MOTION: A THREE-PART INNOVATION MINI-SERIES AIRED ON PBS.
This is an excellent series that looks at the lives and political, cultural, and social work of several individuals with disabilities (including a segment on Ed Roberts and WID). To order this video, please contact People in Motion; PO. Box 2284; Burlington, VT 05407, or call 1-800-336-1917. For information on purchasing People in Motion for institutional use, please call WNET Programming Information at 212-560-2888.

OPEN FUTURES: ROLE MODELS FOR YOUTH WITH DISABILITIES
The Open Futures CD-ROM features role models who have a range of educational backgrounds, occupations, and disabilities.
The role models in the Open Futures videos inspire young people to explore careers and follow their dreams. They also help parents, counselors, and employers appreciate the value that people with disabilities bring to the workplace.
To order the CD-ROM or videos, contact Program Development Associates, www.disabilitytraining.com, 800-543-2119

 

 


Researching Medical Equipment and Information:

This is an enormous field, and involves many commercial website's. Rather than attempt to direct our members to specific sites, at this time, we would encourage you to use the following search engines (listed below) to conduct your research. Just enter the name of the category you are researching - like "Vitamins", or " Alzheimer's," or "Wheelchairs," and you will get dozens (or thousands!) of responses.

Search Engines:

Google
Yahoo
Dogpile
Ask Jeeves

Additional Research Portals:
Frety

Internet Research Tips:

One thing to be aware of when researching a particular medical condition is that many sites which propose to be "informational" are actually sponsored by drug companies who have a bias toward treating the condition with their product. Look carefully at who is producing the site.

Alternative, or Adjunctive treatment therapies (like herbal medicine or acupuncture) is another field of research that holds great promise for people who want to take responsibility for their own health and are willing to try treatments not endorsed by mainstream medicine. As with all other aspects of healthcare (including mainstream medicine!) it is always necessary to use your own judgment , get more than one opinion, and don't believe everything you are told or that you read on the internet!

The internet is a great place to view and research the latest medical equipment. If you are not happy with the recommendations of your health care retailer or therapist, you can go online and view the latest wheelchairs, commodes, and other assistive devices that can help you and your client. Then you know what to ask for when discussing how to get these devices through your insurance or government assistance program.


Government Resources and Legislation:
Understanding UDW's Work in Sacramento.  This page of our website has an overview of how the legislative process affects home care workers and their clients, as well as a list of current legislation.

Legislative Updates & Reports from the Capitol  Has the latest information on Bills affectiv home care workers as they work they way through the legislature.  Also reports on the State Budget.
UDW Campaigns Page, which has resources and information about political issues and legislation that affect home care workers.

Federal Government

New Freedom Initiative
http://www.hhs.gov/newfreedom/
President Bush announced the New Freedom Initiative on February 1, 2001, as part of a nationwide effort to remove barriers to community living for people with disabilities, and supports the principles of home care..

Federal Legislation Affecting Care Providers
Go to Legislation and Election Issues & Research below

The Access Board
http://www.access-board.gov/
An independent Federal agency devoted to accessibility for people with disabilities.

National Council on Disability
http://www.ncd.gov/index.html
NCD is an independent federal agency making recommendations to the President and Congress on issues affecting Americans with disabilities.

Centers for Medicare and Medicaid Services
http://www.cms.hhs.gov/medicaid/default.asp?
This site has information and resources for people who use Medicare or Medicaid, or who need to apply for these services.

SSI - Supplemental Security Income
http://www.ncd.gov/index.html
Since many client's of home care workers receive SSI this site is sometimes a source of necessary information regarding SSI rules.

Social Security
http://www.ssa.gov/
Many client's of home care workers receive Social Security as their main source of income. This site is a starting place to gather information about Social Security rules.

State Government

Overview of State Legislation Process
This link takes you to a page on the "Official California Legislative Information" website, which gives a clear explanation of how the state legislative process works.
http://www.leginfo.ca.gov/bil2lawx.html

State Legislation Affecting Home Care Workers
Go to UDW's Legistative Updates page.

Around the Capitol
This site is excellent for doing your own research; tracking particular bills, elections, etc.
http://www.aroundthecapitol.com

California Department of Social Services, Forms Management Unit
http://www.dss.cahwnet.gov/lettersnotices/default.htm
Has "All County Letters" and "All County Information Notices" both of which often apply to IHSS and MediCal.

California State Website
http://www.ca.gov/state/portal/myca_homepage.jsp

California Governor's Website
http://www.ca.gov/state/portal/myca_homepage.jsp

California State Assembly
http://www.assembly.ca.gov

California State Senate
http://www.sen.ca.gov

California Department of Health & Human Services
http://www.chhs.ca.gov/

California Department of Social Services
http://www.dss.cahwnet.gov/

California State Association of Counties
http://csac.counties.org

Centers for Medicare and Medicaid Services
http://www.cms.hhs.gov/states/

Legislation and Election Issues & Research

How Legislation Impacts Home Care Workers
Understanding UDW's Work in Sacramento describing how legislation affects homecare workers and their clients.  This page will also give you background on the State budget and homecare as well as the basic legislation that formed our present homecare system.
For specific information on current bills, the current budget and its affect on homecare, and specific reports on legislative issues from advocacy "watchdogs" like CDCAN, go to UDW's Legislative Updates and Reports from the Capitol   This page also has a link to a schematic showing How a Bill Becomes a Law (PDF file), with the current legislative calendar.

Find out about your representatives - both before and after they're elected!
AFSCME legislator search
  To find names and contact information for all your elected officials, including the president, members of Congress, governors, state legislators, and more, click the link above then scroll to bottom of page where it says "Look up Elected Officials" and enter your zip code.  The above page also has a "Congressional Scorecard" feature for looking up your elected representatives record, and "View Candidates for Office" so that you can research candidates before you vote.

California Association of Public Authorities for IHSS
California PA (IHSS) - legislation pages Public Authorities are set up by individual counties for the administration of the IHSS program. The California Association of Public Authorities has helped in the 2004 and 2005 budget fight to preserve home care, and their website has in-depth resources for those interested in legislation that affects home care workers.  Use this section for research when writing your legislators. It has targeted documentation of current legislative issues that affect home care workers in California.

Family Caregiver Alliance
Caregiving PolicyDigest
also tracks some legislation that is of relevance to home care workers.

Around the Capitol
This site is excellent for doing your own research; tracking particular bills, elections, etc.
http://www.aroundthecapitol.com

Overview of State Legislation Process
http://www.leginfo.ca.gov/bil2lawx.html
The above link takes you to a page on the "Official California Legislative Information" website (http://www.leginfo.ca.gov), which gives a clear explanation of how the state legislative process works.


 

Labor/Union Sites

AFSCME - UDW National Affiliate: "We are AFSCME," the American Federation of State, County and Municipal Employees. AFSCME is the nation's largest and fastest growing public service employees union. We are 1.4 million members strong and are made up of people who serve the public every day in all areas of government, health, education and other services, both public and private.
http://www.afscme.org/index.cfm

NUHHCE - UDW National Affiliate: The National Union of Hospital and Healthcare Employees.
http://www.nuhhce.org/

AFL-CIO - UDW National Affiliate: The mission of the AFL-CIO is to improve the lives of working families—to bring economic justice to the workplace and social justice to our nation. To accomplish this mission we will build and change the American labor movement.
http://www.aflcio.org/
Also check out their new blog: http://www.aflcio.org/blog

San Diego - Imperial Counties Labor Council Website: -- The San Diego-Imperial Counties Labor Council is a central body affiliate of the AFL-CIO and was founded in 1902. It includes approximately 110 affiliated labor groups within San Diego and Imperial Counties. Our members are the men and women who comprise 100,000 working families.
www.unionyes.org


 

This page updated on March 20, 2008

 

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